I am asked every day about my prognosis. Here’s the deal, chronic Lyme disease doesn’t have a prognosis. We literally take on this illness one day at a time. When I discuss my progress with my doctor, I am constantly reminded that I have been sick a long time (9 years) and that it’s going to take a long time to get well.
Get well. I love that thought, but it’s not necessarily realistic. Don’t get me wrong – I want to get well, but there is no guarantee that I will. In fact, given that the bacteria has invaded so much of my body, it’s likely that I will have the bugs for life.
One Lyme doctor puts it this way – a lot of people live with diseases and illness that have to be managed: diabetes, heart conditions, RA, Parkinson’s; all conditions that require lifelong management. For chronic Lyme sufferers, it can be the same way. I may not ever completely eradicate the disease(s), but I hope to keep improving and someday be able to function better than I have been the last couple of years. That may mean that I have to take medications and supplements or continue dietary restrictions, but it doesn’t mean life is over.
In fact, even though life has been largely done in bed, I’m still living, and I’m still happy. Lyme sucks. But what God has done with my life thru Lyme has been amazing. I would do anything to get rid of this horrible disease – but I wouldn’t change the blessings I have been given because of it.
God is still God.
God is still good.
To HIM be the glory.