9 Years of Hope

9 years ago today, I went to the ER with such severe back pain that I couldn’t walk, couldn’t sit, and the 2 rounds of IV pain meds they gave me barely took the edge off. Since that day - I’ve been disabled. I spent the next 9 months begging doctors for answers. I’ve been…

Never Give Up on Your Dreams

I saw this post this morning and it sure hit home! Digging my way through sickness has been so hard at times that I’ve wanted to just stop fighting. But what does that mean? Do I just lay in bed and whither away? Would that be easier? No - I’d still be sick! I’d still…

The Side Conditions

Co-conditions, accompanying illness, whatever you call them - sometimes the side conditions have more of an impact than the primary conditions. We call it Lyme disease - but that’s not my problem. I sometimes wonder how much the bacteria that causes Lyme is even a factor. My biggest problems right now are spine instability and…

The Joy of Life

I hate being sick. Hate it. It’s impossibly hard most days. I cry. I get mad. I feel hopeless at times. It’s ok to have a pity party just don’t unpack and live there! But I choose how to live with this sickness. I choose love. I choose joy. Yes - it’s a choice. Every…

7 Year Blog Journey

Today marks 7 years since I began sharing my story here on WordPress. My First Post Here - Why I Started a Blog I haven't been consistent and I'm sure sometimes my posts didn't make sense to anyone but me. However I pray that at least some of what I've written has resonated in some…

God is still God

This photo was taken 7 years ago. I was at Stanford Medical Center getting bi-weekly lidocaine infusions. The infusions helped reduce pain - but my body began slowly rejecting it. My last injection ended with me being super loopy and slurring my words. It was a horrible time of life - pre-diagnosis, bed-ridden & using…

Never Surrender Your Own Judgement

I participate in several forums focused on specific health conditions. I initially joined them in the hopes of learning more about some of the conditions I have. What I’ve found is that most of the people participating are in the early stages of some sort of sickness - or at a minimum, they haven’t yet…

Letter to Family & Friends

I've written a letter for Lymies to share with family and friends who may not yet understand the complexities of this sickness. This is a complicated disease to diagnose and treat, but that means it's also complicated to live with it. If you suffer this sickness, give yourself a break, let yourself rest. If you…