9 Years of Hope

9 years ago today, I went to the ER with such severe back pain that I couldn’t walk, couldn’t sit, and the 2 rounds of IV pain meds they gave me barely took the edge off. Since that day - I’ve been disabled. I spent the next 9 months begging doctors for answers. I’ve been…

What A Difference A Day Makes

Yesterday was an amazing day. We spent a lot of time in the Word and talking about life and what’s happening in our world. And then we drove to Barefoot Beach, which is in the middle of a nature preserve (watch out for turtles). I’m not saying I was so full of energy I could…

Never Give Up on Your Dreams

I saw this post this morning and it sure hit home! Digging my way through sickness has been so hard at times that I’ve wanted to just stop fighting. But what does that mean? Do I just lay in bed and whither away? Would that be easier? No - I’d still be sick! I’d still…

The Level of Exhaustion

Being sick is exhausting. You can’t understand that statement unless you’ve been there yourself. I am exhausted. I’m sick of being sick. The pain right now is so high I wake up crying - I can’t walk, I can’t turn over, I can’t breathe without cringing. “There comes a point when the desire to rest…

The Joy of Life

I hate being sick. Hate it. It’s impossibly hard most days. I cry. I get mad. I feel hopeless at times. It’s ok to have a pity party just don’t unpack and live there! But I choose how to live with this sickness. I choose love. I choose joy. Yes - it’s a choice. Every…

Never Surrender Your Own Judgement

I participate in several forums focused on specific health conditions. I initially joined them in the hopes of learning more about some of the conditions I have. What I’ve found is that most of the people participating are in the early stages of some sort of sickness - or at a minimum, they haven’t yet…

Stress and Chronic Complex Illness

Monday night I participated in a meeting to discuss some issues affecting our community. Because of the seriousness of these issues and my tenacious and overly passionate personality, the whole thing was highly stressful for me. Stress is bad for the body - we know this. But it’s particularly bad for people with chronic complex…

Most Don’t Understand – But You Are Not Alone

I recently joined a couple of Facebook groups focused on specific health topics. My hope was to find help and encouragement for managing these difficult conditions, but what I've found instead is a whole bunch of people who are devastated and at their wits end. Most people do not understand how impossibly hard it is…

Death Becomes Her

Fore-Warning: This is an honest and slightly morbid discussion about death. If this topic is uncomfortable for you, stop reading now. I get real here and I know it can be hard to discuss. So we never talk about it. It’s scary to talk about it. It’s sad to talk about it. But we need…