Lyme isn’t just one disease -most people can effectively fight the Lyme bacteria without medical intervention.

When I say Lyme, I’m talking about a complex, chronic sickness that encompasses a wide range of diseases and conditions. Some doctors call it “multi-systemic infectious disease syndrome”. It literally affects every cell in your body – tissue, blood, organs.

I have such long lists of symptoms and diagnosis’ that it’s almost embarrassing. Many doctors have stared at me with blank expressions – I can almost hear them thinking “hypochondriac!”

We have to stick together and support each other in trying to find solutions to the things that keep eating our bodies. We need to share our stories and help each other find answers.

Feel encouraged to share your stories too!

My diagnosis’s since 2014:

  • Lyme (borrelia) – spirochete bacteria
  • Bartonella – malaria like organism
  • Babesia – red blood cell parasite
  • Ehrlichiosis- anaplasmosis bacteria
  • Dysautonomia: POTS – Postural Orthostatic Tachycardia Syndrome (when I stand up, my heart rate goes up, blood pressure goes down)
  • MCAS – Mast Cell Activation Symdrome (body is always in a state of allergic reaction)
  • CCI – Cranial Cervical Instability (actually it’s my whole neck) – loos ligaments make it hard to hold up my head – nothing good happens when I’m upright
  • PsA – Psoriatic Arthritis (not officially diagnosed yet – I see a specialist on 5/3) – 30% of PsA patients have had Lyme – I have psoriasis and I have arthritis so we think this one is likely

You can learn more about these in the posts below. I want to encourage you to reach out and ask questions. I don’t have all the answers – but I will help you as much as I can.

Doctors & Diagnosis’

More Diagnosis’ and Treatment

I have days where I think “this is it – this is as good as it’s gonna get”. Usually this…

The Side Conditions

Co-conditions, accompanying illness, whatever you call them – sometimes the side conditions have more of an impact than the primary…

Dr. Steven Harris – LLMD

This is my Lyme doctor. I am so grateful to him for his work in this specialized field and for…

Ozone Therapy

This week I started ozone therapy. Oxygen is a critical component of healthy cells. Chronically ill people tend to have…

Babesia

One of the many Lyme co-infections and co-conditions is babesia. Most lymies I’ve met on the west coast also have…

Dysautonomia

Shortness of breath – high heart rate – low bp – dizziness – weakness – nausea – all caused by…

God is still God

This photo was taken 7 years ago. I was at Stanford Medical Center getting bi-weekly lidocaine infusions. The infusions helped…

Never Surrender Your Own Judgement

I participate in several forums focused on specific health conditions. I initially joined them in the hopes of learning more…

Stress & Anxiety

Stress Medlineplus says “Stress is your body’s reaction to a challenge or demand.” These reactions can come in the form…

Stress and Chronic Complex Illness

Monday night I participated in a meeting to discuss some issues affecting our community. Because of the seriousness of these…

Mysterious Illness – Videos

As we close out Lyme Disease Awareness month, I’d like to share two videos that expose the symptoms and conflict…

Letter to Family & Friends

I’ve written a letter for Lymies to share with family and friends who may not yet understand the complexities of…

Peeling Back the Layers

The process of healing chronic Lyme isn’t easy. Over the 8 years from the time I contracted Lyme to the…

Listen to Your Body

I keep improving – but then something happens, I don’t know what, and I start to feel like I’m going…

Mast Cell Activation Syndrome

Mast Cells are important components of the immune system. They are triggered by infections, toxins, and even stress – essentially…

Heavy Metal – Not Just a Musical Genre

Severe head and neck pain. Nausea, vomiting, abdominal pain. Numbness & tingling. Shortness of breath. All over weakness and flu-like…

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