Lyme Disease is an epidemic. The CDC estimates 300,000 new cases of Lyme Disease every year. In reality, it is likely 10 times that.
There are 2 primary schools of thought about Lyme and Other Tickborne Diseases. The difference ultimately results in the proper diagnosis and treatment of severely ill patients.
The Infectious Disease Society of America (IDSA) supports a 2 tier testing mechanism and no more than 28 days of antibiotic treatment. The CDC acknowledges the IDSA guideline as the policy for diagnosing and treating Lyme Disease.
The International Lyme and Associated Disease Society (ILADS) stands that the current testing available for Lyme disease is severely flawed. ILADS promotes a clinical diagnosis using test results as support for the diagnosis, but does not rely on a positive or negative finding for the diagnosis. In addition, ILADS treatment includes long term, higher dose antibiotic use. This practice is not accepted by the CDC specifically for Lyme Disease (although it is considered acceptable for other life altering diseases); therefore, it is typically not covered by insurance. In addition, doctors who follow the ILADS guidance have been under scrutiny by the medical community and the CDC. They are often faced with the potential of losing their medical license and incur hundreds of thousands of dollars in fees when summoned to a hearing to defend the treatment they provide to ill patients.
They still do it. Why? Because they are right. It doesn’t take much research, even for a simpleton like me, to figure that out. I’ve provided links on this page to both the ILADS and the IDSA documents, in addition to several other resources that defend the ILADS reasoning.
The bottom line for me is this:
ILADS doctors are willing to risk their medical license and financial ruin in order to help ill patients that have nowhere else to turn
ILADS doctors have successfully treated thousands of patients
The IDSA gives absolutely NO guidance beyond the standard 28 days of antibiotic treatment for patients with lyme and other tickborne diseases. Their explanation for the continuation of their symptoms simply falls to “psychological”.
My prayer is that one day soon, the ILADS guidance will be the standard practice and that existing research (and additional research as needed) will provide reliable testing so that everyone who has even a slight possibility for contracting Lyme can receive results they can count on and treatment they need.
God is still God. God is still good. To Him be the Glory.