I journal everything – sleep, food, activities & symptoms.

There are a few typical Lyme symptoms, but honestly, weeding through the multitude of symptoms that accompany numerous illnesses can be daunting at time.

But they are important clues. Clues that help us figure out what to treat and when. And sometimes, the lack of symptoms tells us we are on the right track. So weed through the posts below, jot down your own symptoms and feel encouraged to contact me…I love to hear from people who are finding even a little hope in my journey.

Humidity & Current Symptoms

A few years back, Dave and I spent a week on Kauai. It was huuuuumid! My pain dissipated. We came home and boom – pain high. Every time I’ve been somewhere with humidity, my pain drops – not gone, but bearable. The last several days have been high humidity – and it’s been great. Today…

Cranial Cervical Instability (CCI)

Adding to the list of diagnosis’ I’ve racked up – CCI is a likely missing piece of the puzzle. Symptoms can include: Head tilting Intracranial hypertension – pressure headaches Brian fog, concentration difficulties, memory issues Dysautonomia Digestive problems Swallowing difficulties Hiccups TMJ Burning mouth and facial pain Strange skin sensations Excessive sweating, Sweaty hands, and…

Swelling

For several days now, my feet (ankles and toes mainly) have been swelling up a little. No clue why. Today, the side of my face, the cheek mainly, is swollen. Tender to the touch too. Lyme can certainly cause swelling in joints they live, especially knee and ankle, but I’m not convinced that’s what this…

Dysautonomia

Shortness of breath – high heart rate – low bp – dizziness – weakness – nausea – all caused by an autonomic nervous system that just doesn’t work right. The Autonomic Nervous System (ANS) connects organs to the brain stem or spinal chord – mediating heart rate, blood pressure, respiratory rate, pupillary response, metabolism, digestion,…

Recognizing Lyme Carditis

Lymedisease.org Video I often chock up chest pain to some random episode caused by Lyme or one of it’s co-conditions. Know the signs of Lyme carditis and when to get help.

Stress & Anxiety

Stress Medlineplus says “Stress is your body’s reaction to a challenge or demand.” These reactions can come in the form of a physical, emotional or mental issues. Financial challenges, relationship troubles, a car crash, the loss of a job – there’s tons of short term factors that can trigger a stress response. When your body…

Stress and Chronic Complex Illness

Monday night I participated in a meeting to discuss some issues affecting our community. Because of the seriousness of these issues and my tenacious and overly passionate personality, the whole thing was highly stressful for me. Stress is bad for the body – we know this. But it’s particularly bad for people with chronic complex…

Mast Cell Activation Syndrome

Mast Cells are important components of the immune system. They are triggered by infections, toxins, and even stress – essentially telling the body to attack the foreign invader. Many Lyme patients develop Mast Cell Activation Syndrome (MCAS), a condition that causes mast cells to become hyperactive, reacting to every stimuli, including foods, smells, even the…

Heavy Metal – Not Just a Musical Genre

Severe head and neck pain. Nausea, vomiting, abdominal pain. Numbness & tingling. Shortness of breath. All over weakness and flu-like feeling. The last few days I have been detoxing heavy metals. It’s one of the many problems associated with Lyme & tick disease. We hold on to toxins, they build up and every now and…

Toxic – one complex piece of a complicated puzzle

I am given recommendations every day by well meaning people who can’t understand why I’m still sick. I appreciate their love and care, but it can feel like they think this complex disease is easier to treat than it actually is. If you haven’t been in the trenches (or lengthy discussions) with someone who has…

Bullseye! And more common Lyme symptoms

I post an awful lot about Lyme and tick disease. I sometimes feel like I’m being obnoxious about it and I wonder if others get tired of seeing it. And then I get a text with a picture of a perfect bullseye rash with the question: “Is this Lyme?” I hate that Lyme continues to…

Insomnia

In the last 2 months, I’ve not had 5 full nights sleep.  Most nights I lay awake until 2 or 3 AM and sleep only a few  hours at a time. You change when you stop sleeping.  You don’t think clearly.  Your body doesn’t have the rest it needs to be able to regenerate so…

Mental Barriers (Doorways)

Have you ever walked through a doorway and forgotten why you went in there? Isn’t it frustrating? Doorways are essentially dividers separating two rooms. While you are in a room, your mind is associating everything in that room (including your thoughts) into specific spaces in your brain. When you cross through a door, your mind begins…

Nausea & Acupressure Points

As part of my illness, I am frequently nauseated. And occasionally, that nausea becomes severe and I will vomit. My husband, desperate to help me when this happens, researched tools to that could offer relief. He found that there are several pressure point in the body that connect to the stomach and can relieve nausea.…