Lyme & Other Tickborne Disease

In 2006, I had two tick bites. Working a few days, I developed a severe respiratory infection and seemingly unrelated back pain, followed by multiple rounds of bronchitis (and occasional pneumonia), ongoing low back pain, neck pain, gastrointestinal issues and debilitating fatigue.

In early 2013, I was prescribed penicillin for strep throat – 3 days later, I went to urgent care with severe neck and head pain…they sent me to the ER with potential meningitis. It wasn’t meningitis. Many years later, we learned I had a jarisch-herheimer (herx) reaction.

On July 10, 2013, life completely changed. I went to the ER that night with the most severe back pain I’d ever had. Two IV doses of dilaudid barely touched the pain. From that point on, I was mostly bedridden and used a wheelchair for years to come.

I saw over 30 doctors and had tons of blood tests (including 5 lyme tests came back negative).

It took 8 years to get diagnosed.

How can this happen in the United States of America?  How is it that doctors can know so much about this disease but misdiagnose me over and over – for 8 years?  

Doctors follow the guidelines as written by the CDC – they don’t just follow those guidelines, they abide by them as gospel truth.

The CDC is wrong.

I began writing this blog for 3 reasons:

  • to educate people about the truths of lyme disease and the false belief that current testing and treatment is sufficient
  • to give hope to others who are fighting an unknown illness
  • to journal my experience with lyme & other tick disease

If you’re sick and you’re reading this – be encouraged!  Life may be changed – but God has a purpose and a plan.  And that plan is always, always, always good.

Swelling

For several days now, my feet (ankles and toes mainly) have been swelling up a little. No clue why. Today, the side of my face, the cheek mainly, is swollen. Tender to the touch too. Lyme can certainly cause swelling in joints they live, especially knee and ankle, but I’m not convinced that’s what this…

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Dysautonomia

Shortness of breath – high heart rate – low bp – dizziness – weakness – nausea – all caused by an autonomic nervous system that just doesn’t work right. The Autonomic Nervous System (ANS) connects organs to the brain stem or spinal chord – mediating heart rate, blood pressure, respiratory rate, pupillary response, metabolism, digestion,…

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Recognizing Lyme Carditis

Lymedisease.org Video I often chock up chest pain to some random episode caused by Lyme or one of it’s co-conditions. Know the signs of Lyme carditis and when to get help.

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