Lyme & Other Tickborne Disease

In 2006, I had two tick bites. Working a few days, I developed a severe respiratory infection and seemingly unrelated back pain, followed by multiple rounds of bronchitis (and occasional pneumonia), ongoing low back pain, neck pain, gastrointestinal issues and debilitating fatigue.

In early 2013, I was prescribed penicillin for strep throat – 3 days later, I went to urgent care with severe neck and head pain…they sent me to the ER with potential meningitis. It wasn’t meningitis. Many years later, we learned I had a jarisch-herheimer (herx) reaction.

On July 10, 2013, life completely changed. I went to the ER that night with the most severe back pain I’d ever had. Two IV doses of dilaudid barely touched the pain. From that point on, I was mostly bedridden and used a wheelchair for years to come.

I saw over 30 doctors and had tons of blood tests (including 5 lyme tests came back negative).

It took 8 years to get diagnosed.

How can this happen in the United States of America?  How is it that doctors can know so much about this disease but misdiagnose me over and over – for 8 years?  

Doctors follow the guidelines as written by the CDC – they don’t just follow those guidelines, they abide by them as gospel truth.

The CDC is wrong.

I began writing this blog for 3 reasons:

  • to educate people about the truths of lyme disease and the false belief that current testing and treatment is sufficient
  • to give hope to others who are fighting an unknown illness
  • to journal my experience with lyme & other tick disease

If you’re sick and you’re reading this – be encouraged! Life may be changed – but God has a purpose and a plan. And that plan is always, always, always good.

Doctors & Diagnosis

Swelling

For several days now, my feet (ankles and toes mainly) have been swelling up a little. No clue why. Today,…

Keep reading

Dysautonomia

Shortness of breath – high heart rate – low bp – dizziness – weakness – nausea – all caused by…

Keep reading

Stress & Anxiety

Stress Medlineplus says “Stress is your body’s reaction to a challenge or demand.” These reactions can come in the form…

Keep reading

Insomnia

In the last 2 months, I’ve not had 5 full nights sleep.  Most nights I lay awake until 2 or…

Keep reading